Well Melody is finally back in school. She was so excited to see all her friends again. She's been out for a few months so it was a really big day for her. We weren't too worried about her going back because her school really looks out for her. They know all about her needs and make sure she isn't left out in any way. She was very tired when she got home but was anxious to go back this morning. Thank you to her school for doing all the little things you do to help Melody.
As for everything else... Melody is still pretty much the same. Her rheumatoid arthritis is still acting up and that makes it hard for her to move around in the morning. She also gets stomach aches that really seem to give her a lot of pain. I hope they ease off soon. She still doesn't get much sleep but we know that is due to the medications. She's use to it now and doesn't get as upset over it as before. On a good note, spirits are very high in the house now that we have our dates for the big Disney World trip! Melody is so excited! You can always hear her and her brother talking about everything they will see when we go. It's really cute to listen to them talk about it. I'm sure the excitement will only grow as the wait gets shorter.
The more, the merrier!
Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
How many letters has Melody received so far?
3/9/10
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1 comment:
Wow..what a big day! Glad to hear she is up to going back to school to see her friends. So sorry that she still isn't feeling 100% better..but I guess that is something to get used to ..atleast for now. Also how exciting about your trip! Have a wonderful time!!
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