We are back from another trip to the IWK. I was happy to see the doctors really paying close attention to the issues with Melody's eyes, arms, and legs. She needs to be seen by a neurologist to get more answers. So now we are waiting for a date. I'm sure it won't be a long wait but every day can feel like a week if you don't find a way to pass the time.
Melody started grade 3 at her new school on Tuesday. She was so happy when she got off the bus and had lots to talk about. She's fitting in so well and making friends. Her principal and teachers are well aware of her situation and doing everything they can to make sure Melody is safe and fitting in with the other kids. It is so comforting to know that they are looking out for her.
The more, the merrier!
Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
How many letters has Melody received so far?
9/8/10
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