The more, the merrier!

Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.



Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.



Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.







If you'd like to send along some sunshine, please send it to the following address:







Mail for Melody



57 Chaleur Drive



Belledune, NB



E8G 1Z3



Canada







Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.







How many letters has Melody received so far?


8/4/10

A Quick Update on Miss Melody


Well since we got back from Florida we have had some ups and downs. Melody was admitted in the hospital for a few days at one point because she had a stomach virus. It was scary to see her so sick. After that things went good for a little while. She's made a couple more trips to the IWK with Teddy bears for the children. She loves doing nice things for them. It really boosts her spirits. We've had two scares with Melody's levels reporting high numbers and we were worried about her liver and kidneys. Thankfully things went back to normal both times. The most stressful part is the waiting to see what will happen once we find out that her levels are off. A week of waiting seems like months. It's been 4 weeks however and so far her levels are fine. Let's hope it continues!
With the summer here Melody is finding it hard not being able to be out in the sun to play with her friends. She does have a friend who comes over a lot to play Nintendo DS and WII with her. They have so much fun and it keeps Melody smiling. She gets to go out after supper to play. This usually means playing in the sprinkler with her brother and friends. They have lots of fun.
Melody has been having issues with her legs, arms and eyes. The doctors have not been able to figure it out yet. On our next visit (which is soon) I'm really going to push for answers because it is getting much worst. Seeing how it has progressed in just a couple of weeks is scary. I'm sure the IWK will have a better idea on our next trip. Well I think that brings everything up to date. Her next IWK visit is soon. I hope I will have good news to post!
Posted by Mail for Melody

1 comment:

Valerie Roy said...

Good luck Melody! Hope all goes well:)

Love u

August 4, 2010 at 1:09 PM

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