The more, the merrier!

Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.



Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.



Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.







If you'd like to send along some sunshine, please send it to the following address:







Mail for Melody



57 Chaleur Drive



Belledune, NB



E8G 1Z3



Canada







Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.







How many letters has Melody received so far?


9/26/09

Melody Update!

I'm happy to report that Melody is doing well. She was having a hard time with a nasty cold but is getting over it slowly but surely. We have had many trips to the IWK and she is still brave each time we go. Our most recent trip she had a couple of tests done that were new to her. She was very nervous but still did them without any fuss. We are so proud of her! Another thing is how Melody handles the long car drive to and from Halifax. She never complains about it. We know she gets stiff so we do try to make stops along the way for her to get out and stretch.

Melody is loving school and being able to see all her friends. She has missed a lot of days already but with the help of her teacher and principal she is not behind in her classes. It's great to see how her school is supporting her with all her needs. It's a comfort to be able to send your child to school and not have to worry.

Melody has not been missing going outside lately and that is all thanks to two things. One is our new family puppy. Melody plays with Rory all the time but her favorite time is tummy rubbing time which Rory takes full advantage of. The other thing is her good friend Andrew. He comes over to play Nintendo DS with Melody on a regular basis. It's so nice to hear them in her room laughing and having fun. She's so happy when he comes over. We are very happy Melody has found such a good friend.

I'm not sure when our next trip to the IWK is but I know it will be soon. Just waiting to hear back from the doctor. Unfortunetly these trips have become a permanent thing. We are worried about traveling during the winter months but will cross that hurdle when we get to it. We are taking everything one day at a time.

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