I figured it was time for an update on our Princess Melody. There has been a couple of things but nothing too serious. First of all Melody is no longer in school. With the H1N1 going around we along with our family doctor felt it was best she stay home. Her doctor at the IWK also agreed with our decision. No need to be taking risks now with Melody. She is dealing with enough right now as it is. She doesn't go out in public at all anymore so she is really missing her friends. Can't wait for this H1N1 virus to settle down so we can get back to our semi-normal life.
During our last visit to the IWK Melody's meds were adjusted a little for her. She is really swelled a lot more than they were expecting so with these adjustments we should be seeing some improvment soon. I'm sure no one will be happier than Melody about that. She isn't comfortable at all. Her cheeks feel heavy and her clothes don't fit her the way she likes. Hopefully in the days to come she will be feeling a little better.
Another thing is Melody's birthday that is coming in just a couple of weeks. We were suppose to have a big party for her and all her school friends but again with the virus going around we can no longer go with that plan. Melody was pretty sad about it. We promised her that we would think up another way to make her day extra special. I have a couple of ideas but nothing for sure yet. We better figure it out soon however because December 6th is coming fast.
Melody is still getting very excited about the letters she receives in the mail. She even writes back to a few each week. Every return address is kept so that we can write back eventually. All letters are put into a plastic sleeve and then into her special big binders. She is taking one of the binders with her on her next visit to the IWK to show the Team that works with her. She's very proud of them and they makes her smile. So please pass her blog on to everyone you know so that Melody can keep getting letters that brighten up her day! Our next trip to the IWK is in 2 days. Hope all goes well. I always get a little more stressed right before we leave. I will be sure to post how everything goes when we return. Thank you to everyone who has sent our Princess Melody a card or letter. It means a lot to us how people from all over the world are taking time to send something to brighten our little girl's day.
The more, the merrier!
Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
How many letters has Melody received so far?
11/13/09
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