We have once again returned from another trip to the IWK. The drive there was the worst yet. The rain was so heavy at times and caused zero visibility. This made the trip really long and stressful since we had to slow down and even stop at times. To add to the stress, Melody wasn't feeling good. Her stomach was really upset. I was glad to arrive safely.
Melody did have a good visit at the IWK this time. She got to laugh with Buddy the Clown (The one thing that she looks forward to when we go there) and he showed her a new magic trick. She was pretty excited about it. The doctor was pleased with her progress this time. Melody has been having problems with nausea a lot lately so the doctor prescribed something to help with that. So far so good! Let's keep our fingers crossed that it stays that way. Another thing Melody was happy about was meeting up with a schoolmate of hers at the hospital. He just happened to have an appointment there on the same day as her. She thought it was great to see a familiar face from our area. Our drive home the next day was much better. No rain or snow. I'm not looking forward to the winter trips but we can deal with that when the time comes. Our next trip to the IWK will be in a couple of weeks.
Melody and I would also like to thank her very good friend Andrew and his mom for taking the time to make Melody a CD with all her favorite songs to listen to on the way to the IWK. Melody and I have a routine that we do when leaving on these trips. We pop in a CD of Miley or Hannah, put up the volume and sing along with it. Party in the USA is usually the one to get us started. Somehow the CD got lost since our last trip so Andrew made sure it was the first song on the CD he made for us. Thanks again! We really enjoyed it and will be listening to it again on our next trip!
The more, the merrier!
Melody is now 15 years old. She is still being followed at the IWK Children's Hospital in Nova Scotia. Melody has been very strong through all this and we are very proud of her. Below is the original write up for Melody's story and the concept for this blog.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
Melody is just 6 years old and has recently been diagnosed with Juvenile Dermatomyositis; a rare disease that only 1 to 3 children per million a year are diagnosed with. She is currently undergoing a great deal of testing at a children's hospital to determine the extent of the disease and how it will be treated. This disease comes with plenty of pain and limits Melody's ability to do a lot of the things children her age enjoy.
Seeing that this disease cannot be cured, only treated, Melody has a long road ahead of her. Her family would give anything to make this road a little brighter for their special girl. This is where you come in! We all know how exciting it is to get a handwritten letter or card in the mailbox, so we thought it would be fun for Melody to look forward to getting some mail of her own. She has a map of the world on her wall and puts a little sticker on every place she receives a letter from.
If you'd like to send along some sunshine, please send it to the following address:
Mail for Melody
57 Chaleur Drive
Belledune, NB
E8G 1Z3
Canada
Thank you so much for taking the time to participate. Your thoughtfulness is deeply appreciated! We will continue to update this blog with Melody's progress, so feel free to come back anytime.
How many letters has Melody received so far?
11/18/09
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